PianoRayK (pianorayk) wrote in community_band,

Help someone in need . . .


This email crossed my inbox yesterday. I know Jayme Rubenstein; he is a fraternity brother from my home chapter of KKΨ (for those of you not in the know, KKΨ is the national honorary band fraternity). I thought it would be appropriate to get the word out (I plan on donating myself). Feel free to do with it as you see fit.


Message begins:

Monday, September 25, 2006

Dear Friends,

Our dad, David Rubenstein, is 52-years-old. If things continue as they are, he most likely will not see 55. He has systemic scleroderma, a rare autoimmune disease that causes the skin, lungs, and other connective tissues in his body to harden. His lung capacity is 45% and falling.

Until 3 years ago, other patients with advanced systemic scleroderma had all passed away. Now, doctors have learned to use patients' own bone marrow cells to reverse damage and extend their lives. Our dad is scheduled for a bone marrow transplant this coming November.

Our health insurance company has denied coverage for the transplant needed to save his life, considering it is experimental. In order to have the transplant, our family must pay $90,000 to the hospital beforehand and an additional sum of about $50,000 for other expenses related to the transplant and follow-up care. If we do not raise the money, he will lose the appointment, and we lose our Dad.

Fortunately for us, the National Foundation for Transplants (NFT) was founded 23 years ago. The NFT is a non-profit organization, which assists transplant patients directly with advocacy and financial support. All of the money donated to the NFT goes directly to pay for transplant-recipient's care.

Here is where you come in. If you would like to get involved, please let us know and we will keep you on an e-mail list to get updates on any fundraisers we have going, and if/when we need any positions filled.

If you, or anyone you know, would like to make a direct donation, here's how:

1) WRITE A CHECK, payable to "Nat'l Foundation for Transplants," memo
line: "MA Bone Marrow Fund." Send to:

National Foundation for Transplants
MA Bone Marrow Fund
P.O. Box 5611
Marlboro, MA 01752

2) PAY BY PHONE. Call the NFT toll-free at 800-489-3863 and specify your credit-card donation is for David Rubenstein's Massachusetts Bone Marrow Fund.

3) NFT is working on setting up a PayPal account specifically for our dad's funds. I will send out an update when that goes into effect.

Every dollar counts! If we manage to overshoot our goal, excess donations will go into the NFT's general fund to help more patients afford this life-saving procedure. Whether you donate or not, please forward this e-mail to all YOUR friends, families, and co-workers. Dollars only come in when the word goes out.

Thank you all for your help and friendship. It means the world to our family the love and support we've been given through this process.

Jayme & Emily Rubenstein
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